September 8, 2018

Another cooking day with Victoria! Victoria is the chef that’s granting my wish from Make-A-Wish. Today we made green onion pancake, steamed broccoli, and a pasta salad.

The green onion pancake is a recipe my grandma knows. Since we didn’t use any yeast, the green onion pancake wasn’t easy to make. We made a dough with flour and water, and mixed green onion and salt in the dough. We rolled the pancake in circles, then fried them.

For the steamed broccoli, we put a small amount of water in a pot and added the brocoli. The evaporated water softens the broccoli. After the broccoli was steamed, we mixed it with grapes, bell pepper, pine nuts, and red onions.

Victoria chopped green olives in half while the egg noodles were boiling. She also diced some red onion. After the egg noodles were drained, she mixed them with the green olives and red onion. Sun dried tomato, red wine vinegar, Italian seasoning, and mustard were also added. To plate the pasta salad we added some basil leaves.

Check out Victoria here: https://www.eastbayhealthychef.com/

September 22, 2018

Victoria came, and we made spaghetti squash with brussel sprouts and Singaporean noodles today. In case you don’t know, Victoria is a chef that’s granting wish. Together, we’re going to create a cookbook.

I told Victoria about Nicole, and Victoria said people like Nicole, people with medical disabilities, is why she’s doing this. Victoria said condolences.

Victoria showed us how to cut a spaghetti squash in half. At the same time, we quartered the brussel sprouts. We rubbed both the spaghetti squash and brussel sprouts with olive oil, Italian seasoning, and garlic powder. They were roasted in the oven. Then we sauteed ground turkey in a pan. Spaghetti sauce was added with the turkey, and we let it simmer. After the brussel sprouts and spaghetti squash were done roasting, we were able to scoop out spaghetti strands from the squash. The strands were plated with the simmered sauce on top and sprinkled with brussel sprouts.

There’s a lot of ingredients for Singaporean noodles. There are prawns, rice noodles, bean sprouts, chicken, soy sauce, tomatoes. The rice noodles are soaked in water while the prawns and chicken are marinated in soy sauce. After they’re marinate, the prawns are sauteed in a pan. Then the chicken are sauteed. The noodles are added in the pan. The noodles are seasoned with curry powder, soy sauce, and sesame oil. Tomatoes are incorporated. Sprinkled on top are bean sprouts and green onion.

Check out Victoria: https://www.eastbayhealthychef.com/

September 29, 2018

Today I cooked with Victoria, the chef granting my wish. Victoria’s son also came. He’s a marketing (or media?) major so he’s helping Make-A-Wish by documenting our cooking sessions. We made soba noodles and ramen today.

For the soba noodles, we boiled them in water for a short amount of time. Simultaneously we fried tofu with only little oil. After we drained the noodles, we mixed them with the tofu and added some sesame oil, grated garlic, soy sauce, and green onions.

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For the ramen we boiled water with chicken and soy sauce to make broth. After about an hour, we mixed already cooked ramen with the broth. We shredded the chicken and added it on top of the ramen, along with tofu, red onion, and green onions.

Check Victoria out here: https://www.eastbayhealthychef.com/

October 6, 2018

Another cooking session with Victoria! Victoria is the chef that is granting my Make-A-Wish. Today we’re making salad. At Ronald McDonald house I developed a regimen:

  • Exercise at least 10 minutes walking on the treadmill
  • Ride at least 1 hour on the gym bike
  • Walk 10,000 steps (tracked by my Fitbit)
  • Eat a salad or another vegetable dish
  • Drink a protein shake

I’ve modified my schedule, but I stopped eating a salad each day. Therefore, I had Victoria help me with some salad recipes.

For our caesar salad, we first made our own croutons. We cut a French baguette into cubes, seasoned the cubes with italian herb seasoning, and tossed them with olive oil. The cubes were baked in the oven. Then a caesar dressing was made. Surprisingly there’s anchovies in a caesar dressing. Anchovies, mayonnaise, lemon juice, and mustard were blended. Finally, cut up pieces of romaine lettuce were tossed with the homemade croutons and caesar dressing. Shredded parmesan cheese and red onions were spread on top of the salad.

Next is the kale salad. Quinoa was cooked in a pot with water and curry seasoning, kale was chopped into pieces, and apples were cubed. After the quinoa was cooked, we mixed it with the kale, cubed apples, some red onions, and pecans. It was delicious.

Check Victoria out: https://www.eastbayhealthychef.com/

October 21, 2018

Today I cooked with Victoria, the chef from Make-A-Wish. She brought a bunch of ingredients: chicken breast, thai basil, coconut milk, coriander, lemongrass, tofu, etc. We made Thai Basil Fried Rice and Tofu in Thai Green Curry.

For Thai Basil Fried Rice we marinate the chicken we cubed in soy sauce. Subsequently we fried the chicken in a pan. After the chicken was thoroughly cooked we added cooked brown rice. We added some sesame oil and soy sauce. Lastly, we added the Thai Basil, but only let it wilt for 30 seconds.

For the Tofu in Thai Green Curry, we made a green curry paste. For the green curry paste we added thai basil, roasted coriander, cilantro, coconut milk, shrimp paste, and lemongrass in a blender. After the paste was blended we added it to coconut milk that was being heated in a pan. After combining the coconut milk and paste together, we dropped tofu cubes into the mixture and incorporated it.

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I talked to Victoria after cooking. Victoria says she loves working for herself. She wants to focus on those with physical disabilities so they can be healthier. Maybe in the future, she volunteer in a hospital and cook for them.

Check her out here: https://www.eastbayhealthychef.com/

November 3, 2018

Another cooking day with Victoria! We made beef stew, singang, and seared chicken.

There was also a surprise visitor joining our cooking session today. Kathy Mima, my old tutor, visited me. Kathy has been very supportive since I’ve been in the hospital.

We first made beef stew. We bought beef then chopped it into pieces. We skinned the fat from the pieces then combines it with red wine, garlic powder, thyme, and rosemary. The skimmed fat was cooked and given to our dog, Billy. Victoria taught me how to open a bottle of wine. When we let the beef sit in red wine, it tenderizes and gives the beef flavor. Victoria cut up carrots, celery, potatoes, and leeks. We dredged the beef with flour, then seared it until it was golden brown. After the beef turned golden brown, we deglazed the pot with a cup of red wine and added carrots and leeks. We simmered them for half an hour, then added potatoes and celery.

Next we made singang. Sinigang is a filipino pork stew. We boiled pork in water to render the fat. After the fat was gone, we drained the soup from the pork. We then put the pork in new water, and added ginger, tomatoes, and onions. We simmered the stew for about an hour and a half. Subsequently we added spinach and lemon juice.

We prepared the chicken. Victoria brought leeks and my mom cut them up. We chopped up scallops and garlic and added them to the leeks. Next we dredge the chicken into flour. We seared the dredged chicken in avocado oil. After the four chicken breasts were golden brown on both sides, we added the leek, scallops, and garlic mixture. We deglaze the pan with one tablespoon of white wine and two tablespoons of red wine vinegar. We put a lid on the pan and let the chicken cook. After the sauce reduced, we turned off the heat and added spinach.

Check Victoria out here: https://www.eastbayhealthychef.com/

November 10, 2018

Today is another cooking day with Victoria. Victoria is the chef granting my Make-A-Wish (see August 9, 2018). My Make-A-Wish is to create a cookbook. Last week was actually supposed to be my last cooking session, but she decided to give me another for my birthday (see October 20, 2018) present.

We did two kinds of Alfredo today. The first type of Alfredo was a chicken fettuccine alfredo, and the second was a chicken fettuccine alfredo with mushrooms and tomatoes.

We prepared the ingredients by slicing chicken breasts into strips, thinly slicing mushrooms, dicing onions, dicing tomatoes, and mincing garlic. We sauteed diced onions in a pan with a little olive oil. When the onion was translucent, we added the chicken breast strips and minced garlic. We let the chicken sit, and after the chicken was cooked we dumped half of the mixture into another pan.

In the first pan we added garlic powder and salt, then let it simmer.

In the second pan we added the diced tomatoes and sliced mushrooms. We also added garlic powder and salt. We continuously stirred the mixture until the released mushroom juices were evaporated.

In a large pot we added 3 cups of half & half and 3 cups of chicken broth. We added fettuccine when the mixture came to a boil. We used a whole package of fettuccine (16 oz). The fettuccine absorbs the mixture, therefore it reduces; the starch released by the fettuccine thickens the mixture, making it a sauce.

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When the fettuccine was Al dente, we separated the noodle in half for each pan. The noodles were combined with the pans ingredients, and that’s it!

Today is my last cooking session with Victoria. I already chose what recipes we made to include in the cookbook. Victoria will take those recipes and write them. When Victoria is finished writing those recipes, she’ll email them to my Mom and I, and we’ll try to recreate them. Victoria and I will meet again in December to format the cookbook.

Check out Victoria: https://www.eastbayhealthychef.com/

December 7, 2018

I had a doctor’s appointment at Lucile Packard Children’s Hospital today.

We left Pleasanton at 8 AM. We arrived at Stanford just in time for my 9:45 AM appointment. We checked vitals first, then I had my echo done. An echo is short for an echocardiogram, which is a test that takes pictures of your heart. It’s like an ultrasound for the heart.

After the echo, we went to the clinic. The clinic is the part of the appointment when you talk to your doctors. Everything is great. My sneezing is okay. I don’t think I’m sick.

My Prograf levels are also great. The level is 6.3, and my goal is between 6 and 8. I’m taking 1 mg of Prograf in the morning and 0.5 mg of Prograf in the evening.

In translation, my immunosuppressants are doing their job well. My immunosuppressants also have a range, and that range tells us how much immunosuppressants are presents in my body right now. My blood is checked regularly because we want that range to fluctuate.

I also noticed that I haven’t had leg pain for a while now. Leg pain refers to when I have pain in my calves. Before my heart transplant, my leg pain was so bad that I had to stay at home for a month.

My psychiatrist also came in. If you remember, in the Ronald McDonald House I had a psychiatrist that I had to meet with every Friday for 5 weeks (see May 22, 2018). Well, that psychiatrist graduated, so I have a new one. Anyways, I told her that everything has gotten better since the first day of school.

The doctors said I could go to transplant camp over the summer. If you remember the transplant reunion (see August 11, 2018), a girl mentioned transplant camp.

Anyways, after my appointment, I ate at the hospital cafeteria. The hospital also opened their gift shop and I bought a jacket there. Afterwards, I went home.

December 12, 2018

I think I’m losing hope.

My G-tube doctor is going to start me on new medication. It’s going to stimulate my appetite.

Since August, I haven’t gained any weight. If I don’t gain weight, then my G-tube is never going to be out.

I’m so sad.

Everyone can eat! That’s what being normal is. Eating is normal. I’m not normal.

The main reason why I want my G-tube out is because I want to be normal. No one else has a G-tube, so why should I?

Yet.. yet I can’t survive without it. That makes me sad.

I thought I was doing so good. I’m eating and exercising. My health is my number one priority, yet I’m not taking care of it?

I eat before school, at school, right after school, and then a meal for dinner. I even have a cookbook!

And it’s not working!!!

Everyone has opposite problems. Everyone just eats and eats, even if they’re full. I wish I could be like that.

Just because my problem is the opposite from everyone else’s doesn’t mean it’s not any less significant.

I’m also nervous about starting the medication.

When I started the Amiodarone, it interacted with my blood thinners and sent me to the hospital. If somehow the pills interact with my other medications and I need to be sent to the hospital, then that’ll suck a lot.

Of course I can just not take the medication. But I don’t know if I trust myself. I thought I was doing great, but noooooo.

It was predicted that by February I would get my G-tube out, but now it’s not a when but if question. If I don’t gain weight by February then I’ll have to get back onto the feeding.

So what am I going to do about it?

In the Ronald McDonald House, I always pushed my endurance everyday. I have a problem that I can overcome with some work.

For one, I have a scale. I can check my weight. Maybe not daily (I don’t know if I’m dedicated enough for that), but at least more than once a week. Secondly, I can snacks throughout the day. When I’m doing my homework, when I’m sitting in class, or when I’m being lazy.

The future of my body depends on these 4 months between today and March. I need to gain weight.

December 15, 2018

Ever since my doctor appointment with the G-tube doctor (see December 12, 2018), I’ve been checking my weight.

I’m around 100 pounds, but my scale is weird.

I’ve been checking my weight in the morning and at night, and I could weigh 104 pounds at night, but 102 pounds the next morning.

I’ve also been noticing my eating patterns.

I think the problem is that I’m always constantly hungry.

I think I’m so used to hunger spasms that I’ve learned to ignore them, and they eventually go away.

When I do eat, I quickly become nauseous.

Hopefully, that’ll change.

Also, I have not started on those appetite pills yet. I want to have Stanford approve them before I start taking them.

I have 3 months to gain 10 pounds. Gotta get that extra fat.