June 18, 2019 – Meet with Izzy

Today I hung out with Izzy. I met Izzy at the transplant reunion party last year (August 11, 2018). Since then, we’ve become friends. 

She’s also a heart transplant recipient. Not only is she younger than me, but she’s also more active than me. She does gymnastics, volleyball, and track. 

We met at Denica’s Real Food Kitchen, which is a cafe that does a lot of brunch stuff. Since I wanted to be pseudo-healthy, I got a salad. 

We talked a lot. Izzy’s medications have significantly reduced since her transplant. On top of that, she’s always being active and has almost never been sick. She’s always careful in school.

If she’s at a playdate or sleepover, she makes sure to grab her medication or have her mom bring her meds. So she’s very responsible.

We also talked about my driver’s license and college. I’m in SAT Prep class right now and it sucks. It takes up all my time and I can’t even update my blog.

For my driver’s license, I’m pretty lazy about driver’s ed so at this point I’m just going to wait until I’m 18 to get my permit.

It was a pretty good day meeting Izzy again. She asked me if I’m going to go to transplant camp, and I said I would. She said it’s a lot of fun, and that it’d really be great.

Joey Harbour

General Questions

How old are you?

15

Where are you from?

Pensacola, Florida

Transplant

What was your transplant?

kidney, received on June 24, 2004, at 22 months old

What was your condition that led to the transplant?

posterior urethral valve

How long did you wait for your transplant?

year and a half

How was the road to recovery?

For my family, stressful. Stressful but relieving.

What can you do now after transplant?

Living is one. It was a bonding moment for my family.

What are you most excited about after being healthy?

Being able to inspire others.

Donor

Do you know your donor?

Yes, it was his mom.

How is your mom doing?

Good. She’s living a normal life – somewhat.

Were there any complications?

They had to put it in the front because the adult kidney was too big for my tiny baby kidney.

Was your mom scared to donate?

She was scared to go into surgery but she was willing to donate.

Why did your mom donate?

She was the only match in my family and that was the easiest option.

How do you celebrate your transplant date?

Just like a birthday. With presents and stuff.

What would you say to people considering to be an organ donor?

Do it. You’re gonna save a life.

(AJ) Alejandro Avila

General Questions

How old are you?

16

Where are you from?

Sacramento

Transplant

He was 6 months old when he recieved the transplant.

What was your transplant?

Liver

What was your condition that led to the transplant?

Biliari Atresia

What was life like before transplant?

My skin was really pale and greenish and my eyes were yellow.

How long did you wait for your transplant?

From what I know, there was this grey area… If I could guess, I’d say a week or two.

How was the road to recovery?

Road to recovery was hard for my mom, because she didn’t know what I was like… She had to make a really gross dish, and I had to eat it and it was hard for her.

What can you do now after transplant?

Idk, I can’t eat red meat now.

What are you most excited about after being healthy?

I don’t know what normal is.

Donor

Do you know your donor?

Yes, I know his name was Chris.

Was it a male or a female? How old were they?

Male. 19.

How did they die?

He passed in a truck incident.

Who decided to be an organ donor? Their family or the donor themselves?

Chris decided.

Did you meet their family?

I met one of them.

What was that like?

She was nice.

What would you say to people considering to be an organ donor?

You’re helping people not die.

Alejandro is not scared about the future and is pretty happy with his life.

Miranda Lee Miracle Weise

General Questions

How old are you?

16

Where are you from?

Livermore

Transplant

Miranda received her transplant on October 23, 2019.

What was your transplant?

Heart & Liver

What was your condition that led to the transplant?

Heart was failing

What was life like before transplant?

I got tired a lot. I wasn’t hyper. I couldn’t do sports (high impact sports). I also got tired really easily.

How long did you wait for your transplant?

2 Months

How was the road to recovery?

Very long and hard, but my mom helped me.

What can you do now after transplant?

I think I can do more sports. Not all of them but most of them.

What are you most excited about after being healthy?

So I have a plan when I’m older. I’d have a rusty farm, and I would have people who didn’t have a place to live live there.

Donor

Do you know your donor?

No.

Do you want to meet them?

Yes. They’re family.

What would you say to people considering to be an organ donor?

Definitely do it because it saves people’s lives. Even if you’re alive, donating a liver, kidney can save people’s lives. Even if it’s really painful, you’re saving a life.

Bode Everist

General Questions

How old are you?

16

Where are you from?

North Tahoe, California

Transplant

What was your transplant?

Liver, received May 26, 2015

What was your condition that led to the transplant?

biliary atresia

What was life like before transplant?

It was rough. It was not the best. It wasn’t normal. It was hospital stay after hospital stay.

How long did you wait for your transplant?

12 years

How was the road to recovery?

Recovery was about 2 months, it felt really long because I couldn’t do any normal things

What can you do now after transplant?

Play football. And also just spending enough time with friends outside of the hospital. Just being outside with the lake is very beautiful.

What are you most excited about after being healthy?

Play football. Play sports. Go to state championships. Get those ranks.

Donor

Do you know your donor?

Yes, I do.

Was it a male or a female? How old were they?

Female, currently 36

Why did she decide to donate?

She was just a really kind-hearted person who had empathy towards me.

Did you meet her?

Yeah, I see her all the time and we became best friends, we became family.

What would you say to people considering to be an organ donor?

Go for it.

Bode has a tattoo of his transplant date. On his transplant date, he spends time with his donor and family.

Danica Marlo Rose

General Questions

How old are you?

15

Where are you from?

California

Transplant

What was your transplant?

Kidney, recieved March 24, 2014

What was your condition that led to the transplant?

Doctors don’t know how she got it.

What was life like before transplant?

It was tough for me because I didn’t really eat enough and my mom was worried about me since I was getting really skinny. I would get really nauseous.

Danica threw up in class and her classmates laughed at her. One girl stood up for her; Danica told that girl people were jealous of Danica for not doing P.E.

How long did you wait for your transplant?

1 year and 3½ months

How was the road to recovery?

I remember being really tired and really hungry. My grandpa came in and asked if he could buy me anything and I said Taco Bell.

Overall, she said it was easy.

What can you do now after transplant?

Well I mean there are certain things I couldn’t do but now can do

  • swimming
  • dancing
  • hula-hooping

I felt like it [transplant] changed my life because I’m really mature for my age as teachers have told me.

What are you most excited about after being healthy?

I know that there is a lot of stuff but I know that my medications might not work and that scares me.

She looks on the bright side and likes being more active.

Donor

Do you know your donor?

Yes, it was her uncle

Was it a male or a female? How old were they?

Male. Mid 20s (24)

Why did he decide to donate?

He had to give me his kidney so I could have another chance at life.

Brooklyn Myers

General Questions

How old are you?

15

Where are you from?

San Jose, CA

Transplant

What was your transplant?

Liver, received at 7 months old

What was your condition that led to the transplant?

biliary atresia

What was life like before transplant?

Idk, I was adopted

How long did you wait for your transplant?

4 months

How was the road to recovery?

Difficult, I guess. I know I had the transplant after I was adopted. I had a lot of blood clots so I was in and out of the hospital until the summer of 3rd grade.

What can you do now after transplant?

I don’t know. Live?

What are you most excited about after being healthy?

Doing what I want. Sports. Stuff.

Donor

Do you know your donor?

No. I wish I did.

Why do you want to meet your donor?

Um, well, I want to meet their family. What they’re like, to thank their son/daughter for it must’ve been hard.

What would you say to people considering to be an organ donor?

Um… I say do it. When you die, your organs start disintegrating and might as well put it to use.

What do you do to celebrate on your transplant date?

I don’t do anything. I wish I did.

Mikayla Bruce

General Questions

How old are you?

16

Transplant

What was your transplant?

liver & small bowel, received April 2008

What was life like before transplant?

I got sick a lot and had to stay in the hospital.

How was the road to recovery?

I think I had to stay in the hospital for a couple of months.

What can you do now after transplant?

A lot of stuff, I guess. I mean I don’t get sick as often.

What are you most excited about after being healthy?

That I don’t get sick a lot and have to stay in the hospital.

Donor

Do you know your donor?

No.

Was it a male or a female? How old were they?

They were a child. N/A gender

How do you celebrate your transplant date?

I don’t really celebrate it. My dad tells everyone though.

Would you like to meet your donor family?

Yeah, the family, sure.

Have you tried reaching out?

No, I don’t think so.

What would you say to people considering to be an organ donor?

You made a good choice. Hope all goes well.