June 9, 2018

My Dad visited me today. This is the second time he’s visited. The last time he visited I spent the day with Ray instead of him (see May 26, 2018).

My heart pounding is still limiting me from doing any activity. I hate my heart pounding. One step and I instantly feel my heart beating in my ear. It feels so uncomfortable, and it makes me nauseous and physically tired.

My Dad knew this, so he asked me if I wanted to explore. He drove me along El Camino Real. El Camino Real is a long road that cuts through many cities, including Palo Alto. You can drive from San Francisco to Mountain View along El Camino Real.

From Palo Alto, we went north on El Camino Real. We passed through Menlo Park, Atherton, Redwood City, San Carlos, Belmont, San Mateo, and Burlingame. We drove through San Carlos Downtown, Belmont Downtown, and San Mateo Downtown.

In the car, I had to adjust myself every minute. It’s gotten better ever since I’ve been out of the hospital. What is?

I call it a hot & cold sensation. My body temperature adjusts rapidly due to my new heart. If I lay my back on a chair and cover myself with a blanket I immediately feel so hot I start sweating. If I sit up and take off my blanket I get so cold I start shivering. A nurse told me it was because my heart was pumping regularly, and my blood cells had normal circulation. My body had to learn how to control body heat.

When we returned to Palo Alto and I got my medication my Dad drove south to Mountain View. We ate dinner at a restaurant in Mountain View called Little Sheep Mongolian Hot Pot.

June 23, 2018

Dad visited me today. Julia, my sister, also came. We decided to eat ramen at Downtown Palo Alto. Despite the ramen being good, I couldn’t eat it all. In the car I drank an entire protein shake so I felt nauseous.

These are my daily requirements:

  • Exercise at least 10 minutes walking on the treadmill
  • Ride at least 1 hour on the gym bike
  • Walk 10,000 steps (tracked by my Fitbit)
  • Eat a salad or another vegetable dish
  • Drink a protein shake

I set these requirements for myself after transplant so I can recover faster. I need to drink protein shakes because my doctor recommended me to eat more protein. I have a tube inside of me that I used before my heart transplant. Through the tube I would insert nutrient shakes (Nutren 2.0). After my heart transplant, I have an appetite so I can eat my entire day’s calories. If I stop using my tube for 6 months, I can have it removed.

My Dad drove us to California Avenue. California Avenue is where the Palo Alto farmers market is held. My Mom and I went to that farmer’s market and it seemed pretty cool (see June 3, 2018). California Avenue also has a Caltrain station. Caltrain is a public transport train in Palo Alto.

After we explored California Avenue, we dropped off Julia at the Stanford Mall. The Stanford Mall is across the Ronald McDonald House. She wanted to buy clothes at Urban Outfitters.

My Dad and I went to a bookstore in Menlo Park. Menlo Park is a city right next to Palo Alto. The bookstore is Kepler’s Books. We also bought drinks from a nearby cafe, Cafe Borrone.

When we went back to the Ronald McDonald, we met with Julia. We both went to Downtown Mountain View for dinner. Mountain View is farther away from Palo Alto, but their downtown is nice. Mountain View is the headquarters for Google, so you see a lot of young employees in Downtown Mountain View. We ate at an Indian restaurant.