April 28, 2018

Shoot me. Please.

Everything is painful. What is this in my neck, an IV? That’s painful. What is this in my hand? It’s popping out of the skin like a bulge. I… what??? Actual STAPLES inside me. I use staples to turn in my homework, not seal up a big HOLE.

I feel like I’m going to die. My heart is thudding so loud it might pop out of my chest. What is this? I can’t hear anything because my heart is pounding so loud.

Why are there tubes inside of me? There’s actually tubes inside my chest. They’re sucking excess blood from inside my chest.

I’m so uncomfortable. I’m sweating all over. Why am I so hot? I can’t move and change a position since I’m so sore, which I don’t understand? Before I went into the surgery I could at least sit up.

There’s so much plastic inside me: the chest tubes, IVs, and monitors. There’s also a lot of stuff connected to me to. There’s also bruises on my hands and arms. There’s also a big pole with tons of machines onto it. I guess that’s where all the medications are.

They want to remove my breathing tube. Did I not mention there’s a tube inside my throat? Yeah there’s a tube inside my throat. They want to remove my breathing tube while I’m conscious. And they did. They just yanked it out like tug a rope. At least I can eat and drink now.

There’s also a catheter in my urethra. So… yeah.

I’m heavily drugged, so at least I’m happy about that. I mean they’re giving me pain medication which is great (even though I still feel awful).

Was transplant right for me? Was this a mistake?

I’m so stressed. Nothing prepared me for this.

May 10, 2018

I’m cordless! That stupid pole is now gone!

They stopped dripping medication for my kidneys. Instead, they’ll just insert medications throughout the day.

I can finally walk around without dragging that big stupid pole. Now I can walk outside my unit and downstairs. Walking is a lot more tiring dragging the pole around.

There was a festival today on the 3rd floor. For some reason, Tearaway, a video game, wants to advertise their product at a children’s hospital.

There was a PS4 demo, which was cool. With the PS4, they demonstrated VR. I couldn’t bend my neck around for the VR because of my neck staples. I don’t want to pull at them since they’re practically loose.

They gave me a water bottle, lunch box (like I’d be going to school soon. Ha!), and a blanket.

May 13, 2018

They told me I would leave the hospital today or tomorrow!

Finally! Staying in the hospital is horrible.

However, I wouldn’t leave to go home (which suacks). I would leave to the Ronald McDonald House. Yes, Ronald McDonald. Ronald McDonald of McDonald’s, the fast food chain.

McDonald’s has a charity that sets up housing near hospitals for families with their children in critical care. Hence, the Ronald McDonald House. There’s tons of them around the United States.

I am so glad I’m leaving. Every since day one of transplant, I’ve been dreaming of getting out of here. Pain is really, truly, honestly horrible. Is leaving the hospital going to get rid of my pain? Hopefully!

Today is also Mother’s Day. I’m gonna say my heart transplant was the biggest present for my Mom. When I was put on the transplant list, she had so much anxiety. She started taking pills. Thank God I was only on the list for 2 weeks!

Oky, so I’m not leaving today. I’ll leave tomorrow. That’s fine.

The doctor came in to talk to me about my staples. During rounds, I mentioned that before I left the hospital I want my staples taken out.

The doctor told me I would either have to wait until the next biopsy to take out my staples, or take them out now when I’m conscious.

I choose to take them out now.

They took a stapler remover, and used it on a human person. I’ll repeat, they used a STAPLER REMOVER. The staple removers you use to get out the staples in your homework packet, and used it on human flesh.

It was… painful.

What was surprising was no blood came out. The nurse gave me a hot pack to put over my chest.

Even though it was painful, I’m glad they took the staples out. I had a lot of anxiety over the staples because I was afraid that they would just pop out and my chest would just open.

Later in the day the nurses also took out my PICC line (see May 5, 2018). I think a PICC line is like an IV, but larger. Removing the tape made me really anxious, but it didn’t hurt to take out the PICC line. I hate my imagination.

The PICC line was at least a foot long! That was in me? That was in my veins? Oof.

Now all I have is my heart monitor. I ain’t got no tubes, poles, or even IVs. That’s awesome.