June 4, 2018

I watched a movie with my Mom today. We went to Redwood City Downtown to watch Avengers: Infinity War. When I was shortly out of my transplant surgery I was so uncomfortable. To ignore the pain I watched a lot of movie series. One of the movie series I watched was The Avengers.

Avengers: Infinity War is the 3rd movie in the Avengers series. I was so shocked about the ending. Since I watched a lot of Marvel movies, I expected the heroes to always be fine in the end.

After the movie my Mom and I ate at the Old Spaghetti Factory. The Old Spaghetti Factory is a restaurant next to the movie theater. However, since my heart was pounding I couldn’t eat much spaghetti. After my heart transplant, I’ve been experiencing my heart pounding after physical activity. It makes me so uncomfortable I can’t focus on something, not even eating.

That’s not good since I have a tube inside of me. The tube was used to put extra calories and nutrients inside me, but now I’m trying to survive without the tube. If I can’t eat, then this is an impossible mission.

Before transplant, I tried to get off the tube. However, it was really REALLY bad timing. At the time I tried to get off the tube was when I had protein losing enteropathy. My heart started to fail, so other parts of my body were affected. Protein losing enteropathy is when protein is lost by the body. Since I wasn’t getting extra protein, I started to become skinnier and my weight dropped. I needed to get back onto tube feeding.

July 3, 2018

Today is Kayano’s 15th birthday! Kayano is a patient at Stanford, who’s also my next door neighbor at Ronald McDonald. Kayano has kidney failure and he needs to be put on dialysis until he’s healthy enough to be put on the kidney transplant list. Kayano is having less and less energy, so he needs his kidney transplant soon.

We went to Redwood City Downtown to watch a movie. Kayano doesn’t eat food, but he still buys popcorn. He licks the popcorn. After we watched the movie, Kayano’s mom wanted to get birthday decorations at Safeway. As we drove along El Camino Real, Kayano’s mom told us she never knew that Stanford had so many attractions. She thought Stanford was in the middle of nowhere.

When we got back to the Ronald McDonald House we celebrated his birthday in the community dining room. Yesterday Kayano’s mom cooked brownies. We stuck 15 candles into the brownies and Kayano blew them out. Kayano’s mom also bought ice cream at Safeway, so she served the brownies with ice cream.

July 4, 2018

Today is the Fourth of July. Since I’m staying at the Ronald McDonald House, and not at my house in Pleasanton, we don’t really know what to do. I searched the internet, and I found that there’s a fireworks show at Seaport Boulevard in Redwood City.

Redwood City is nearby Palo Alto, the home of Stanford University. Seaport Boulevard is a boulevard that’s near the water, and there’s a private yacht dock along the boulevard.

My Mom drove me to Seaport Boulevard, but then she saw how wheelchair accessible the boulevard was, so she drove back to the Ronald McDonald House to get our grandma. Our grandma also needs special care, so she stays with us at the Ronald McDonald House.

We got takeout food in Downtown Palo Alto from Jing-Jing Szechwan & Hunan Gourmet. I first tasted Jing-Jing in the hospital after transplant. I didn’t have much of an appetite, but I wanted some noodles, so a nurse suggested Jing-Jing since they had great noodles. The hospital food was great, but after awhile it gets boring.

After we got takeout, we went to Seaport Boulevard with grandma. By the time we got there, the fireworks already started and all the cars were jammed. We decided to park outside, and watch the fireworks from the sidewalk. It was a great day.

July 7, 2018

My dad and Julia came to visit me today. Every Saturday my dad visits me at the Ronald McDonald House, and today he brought Julia, my sister. We went to Redwood City to watch Ant Man & the Wasp. Before the movie I bought a salad. I hate salad, but it’s one of my daily requirements:

  • Exercise at least 10 minutes walking on the treadmill
  • Ride at least 1 hour on the gym bike
  • Walk 10,000 steps (tracked by my Fitbit)
  • Eat a salad or another vegetable dish
  • Drink a protein shake

After we watched Ant Man & the Wasp we decided to drive along Seaport Blvd. We went to Seaport Blvd in Redwood City for Fourth of July (see July 4, 2018). My mom and I didn’t get to explore the boulevard that day, but it seemed pretty cool.

Seaport Blvd is a boulevard along the bay. It loops around, and in the loop are tons of office buildings. They have tons of areas to sit and watch the sea, which is pretty cool. We drove to a nearby private yacht dock to admire the scenery.

When we got back to the Ronald McDonald House we went across the street for dinner at the Stanford Mall. We ate at True Food Kitchen, a restaurant claiming to have “honest” food. The wait was terribly long, and the service was awfully slow.

July 13, 2018

There was a music festival today at Downtown Redwood City. My sister and dad also decided to visit me today. We went to the music festival, and it was really fun. There was a lot of people and sun, so I tried to sit in a shaded non crowded area. After transplant. I’m supposed to stay out of the sun since I’m more susceptible to skin cancer. I’m also supposed to stay out of crowded spaces in case of infection.

Downtown Redwood City is about a 5-10 minute drive from the Ronald McDonald House. I usually go to Downtown Redwood City because they have a movie theater. After the music festival we watched a movie called Skyscraper. Skyscraper had amazing graphic visuals that almost made up for the plot.