August 9, 2018

August 9, 2018January 13, 2019 ~ Campjustin ~ 3 Comments

Today I went to Make-A-Wish headquarters in Oakland. At 7 AM my Mom drove us to Oakland’s Chinatown to park our car. First we went to a local bakery to buy some breakfast and take my medicine.

Afterwards we went to the Bay Area Make-A-Wish headquarters. The headquarters is in an office building shared with other companies. After getting directions by security, we went inside these huge double doors. The first thing you see is Make-A-Wish Greater Bay Area behind the reception desk. The walls were painted light blue and the floor was blue carpet. The waiting area featured books that had pictures of other people’s wishes on there.

Beth was excited to see me! Beth is the Make-A-Wish coordinator that plans out all the wishes. At the Ronald McDonald house she called me to figure out more details. Beth told me the headquarters used to be at San Francisco, but then moved to Oakland. She also told me that the headquarters usually don’t have kids visiting. Usually the kids are at the hospital or at home, so me coming was rare.

Beth, my Mom, and I walked past portraits of other children with their wishes. There’s actually a girl who made a fashion runway show. She’s also a heart transplant recipient.

Edit: I met her August 11, 2018, at the transplant reunion party! She’s in the middle wearing a blue shirt:

The girl who did the fashion runway is in the middle.

Victoria, the chef granting my wish, came from Bart. She’s a nutritionist and personal chef that creates healthy meals for others. She said when she was a child, her aunt had a heart attack in front of her and died. That’s when Victoria teared up. One day, Victoria quit her job and went to culinary school. Since then she’s been a successful personal chef. Her goal is to show people a healthier way of eating.

I explained why I wanted to do this. I have a tube inside of me. Before transplant, I didn’t eat enough food each day, so through the tube I insert food inside of me. I would plug my tube to a machine and go to sleep. The next day I would skip breakfast, eat a light lunch and dinner, plug myself in, and repeat. After transplant, I have an appetite. I can start eating full meals every day. I want to develop recipes so that I’ll have enough food to not use my tube anymore. If I eat without my tube for 6 months, then my doctors can take it out.

My Mom, Victoria, Beth, and I went to take a picture in front of the Make-A-Wish logo.

Victoria will meet up with my Mom and me at our own house for cooking lessons (see August 25, 2018).

My Mom and I also checked out a government building nearby. Pictures above!

August 25, 2018

August 25, 2018January 12, 2019 ~ Campjustin ~ 1 Comment

Today is my second session with Victoria, however this will be the first time we’re cooking. Victoria is the chef that’s granting my Make-A-Wish (see August 9, 2018). Her son also came today. He’s a marketing major and is helping Make-A-Wish by taking videos of us cooking. We’re making seared salmon and pancit.

For the seared salmon we rubbed the salmon fillet with garlic and dill. We seared both sides until they were pink. If they’re the slightest raw then I get a chance of catching a virus. My Mom was shocked by how simple it was.

The noodles for the pancit was soaked in water until they became soft. We fried frozen shrimp and cabbage strands in a pan, then added the noodles. We seasoned the noodles with soy sauce, sesame oil, and dill.

Check out Victoria here: https://www.eastbayhealthychef.com/

September 1, 2018

September 1, 2018January 12, 2019 ~ Campjustin ~ Leave a comment

Another cooking day with Victoria! Sadly her son didn’t come. We made chicken salad and pesto noodles.

Yesterday, my Mom made a baked chicken. We shredded the leftover chicken and mixed it with mayonnaise, halved grapes, and dill We put the chicken salad between toasted bread to make a sandwich. It was savory but the grapes had a burst of sweetness. The texture of the bread made it amazing.

For the pesto pasta we made our own pesto. Victoria bought a pot at Trader Joes for $3. Victoria cut the basil leaves from the stems. The leaves were thrown in a blender. She told us if we placed it outside and water it moderately it’ll sprout new leaves.We toasted pine nuts in a pan and added it to the blender. We also added garlic, olive oil, and parmesan cheese. Since we’re trying to be low sodium, we didn’t add salt. Blending all these ingredients made us pesto. We combined the pesto with chicken and tomatoes to add over pasta.

Check out Victoria here: https://www.eastbayhealthychef.com/

September 6, 2018

September 6, 2018April 6, 2023 ~ Campjustin ~ Leave a comment

Noah came to Stanford this weekend. Noah is a 10 year old boy I met at the Ronald McDonald house that was receiving an experimental drug for his stomach cancer. Nolan and I send each other gifts (see August 7, 2018).

After school, my mom and I drove from Pleasanton to Stanford. We met Nolan at a seafood restaurant. His mom was so excited to see me. Nolan had to draw a lot of blood so he was pretty tired. He almost fell asleep while eating his food.

His mom told us that Nolan’s tumor has shrunk so much, that they might surgically remove it. However, they told me that the medication might work so well that the tumor might go away on its own.

They said that the care at the Stanford hospital was exceptional. At Phoenix Children’s Hospital the nurses didn’t give great care. The tumor was on Nolan’s back, so his parents explained not to touch his back. However when he went in for his CT scan, the nurses grabbed him on his back. Noah screamed out in pain. At Stanford’s hospital the nurses and doctors spent a half hour trying to work out the logistics for the CT scan. Where the pillow would go, where to position his back, how to transfer him on the bed. This is because the nurses at Stanford have to go through 7 rounds of interviews before being hired. Their care is exceptional.

After eating, we went to a Starbucks restaurant at Town & Village, a plaza in Palo Alto. Nolan also got gelato from a nearby shop. Nolan is doing great at his elementary school. He skipped a grade so he’s in 4th grade instead of 3rd. His teacher is actually a friend of his mom. His mom explained to the teacher about what happened. He has special accommodations, for example, he doesn’t participate in PE. Instead, he helps the teacher carry basketballs, We talked to his mom about a 504 plan.

Nolan’s parents said it was really lucky that I had my Mom. My Mom cares about me a lot, that’s why she brought me here today.

After saying goodbye, we drove back home.

September 8, 2018

September 8, 2018January 12, 2019 ~ Campjustin ~ Leave a comment

Another cooking day with Victoria! Victoria is the chef that’s granting my wish from Make-A-Wish. Today we made green onion pancake, steamed broccoli, and a pasta salad.

The green onion pancake is a recipe my grandma knows. Since we didn’t use any yeast, the green onion pancake wasn’t easy to make. We made a dough with flour and water, and mixed green onion and salt in the dough. We rolled the pancake in circles, then fried them.

For the steamed broccoli, we put a small amount of water in a pot and added the brocoli. The evaporated water softens the broccoli. After the broccoli was steamed, we mixed it with grapes, bell pepper, pine nuts, and red onions.

Victoria chopped green olives in half while the egg noodles were boiling. She also diced some red onion. After the egg noodles were drained, she mixed them with the green olives and red onion. Sun dried tomato, red wine vinegar, Italian seasoning, and mustard were also added. To plate the pasta salad we added some basil leaves.

Check out Victoria here: https://www.eastbayhealthychef.com/

September 22, 2018

September 22, 2018January 12, 2019 ~ Campjustin ~ Leave a comment

Victoria came, and we made spaghetti squash with brussel sprouts and Singaporean noodles today. In case you don’t know, Victoria is a chef that’s granting wish. Together, we’re going to create a cookbook.

I told Victoria about Nicole, and Victoria said people like Nicole, people with medical disabilities, is why she’s doing this. Victoria said condolences.

Victoria showed us how to cut a spaghetti squash in half. At the same time, we quartered the brussel sprouts. We rubbed both the spaghetti squash and brussel sprouts with olive oil, Italian seasoning, and garlic powder. They were roasted in the oven. Then we sauteed ground turkey in a pan. Spaghetti sauce was added with the turkey, and we let it simmer. After the brussel sprouts and spaghetti squash were done roasting, we were able to scoop out spaghetti strands from the squash. The strands were plated with the simmered sauce on top and sprinkled with brussel sprouts.

There’s a lot of ingredients for Singaporean noodles. There are prawns, rice noodles, bean sprouts, chicken, soy sauce, tomatoes. The rice noodles are soaked in water while the prawns and chicken are marinated in soy sauce. After they’re marinate, the prawns are sauteed in a pan. Then the chicken are sauteed. The noodles are added in the pan. The noodles are seasoned with curry powder, soy sauce, and sesame oil. Tomatoes are incorporated. Sprinkled on top are bean sprouts and green onion.

Check out Victoria: https://www.eastbayhealthychef.com/

September 29, 2018

September 29, 2018October 31, 2019 ~ Campjustin ~ Leave a comment

Today I cooked with Victoria, the chef granting my wish. Victoria’s son also came. He’s a marketing (or media?) major so he’s helping Make-A-Wish by documenting our cooking sessions. We made soba noodles and ramen today.

For the soba noodles, we boiled them in water for a short amount of time. Simultaneously we fried tofu with only little oil. After we drained the noodles, we mixed them with the tofu and added some sesame oil, grated garlic, soy sauce, and green onions.

For the ramen we boiled water with chicken and soy sauce to make broth. After about an hour, we mixed already cooked ramen with the broth. We shredded the chicken and added it on top of the ramen, along with tofu, red onion, and green onions.

Check Victoria out here: https://www.eastbayhealthychef.com/

October 6, 2018

October 6, 2018January 12, 2019 ~ Campjustin ~ Leave a comment

Another cooking session with Victoria! Victoria is the chef that is granting my Make-A-Wish. Today we’re making salad. At Ronald McDonald house I developed a regimen:

Exercise at least 10 minutes walking on the treadmill
Ride at least 1 hour on the gym bike
Walk 10,000 steps (tracked by my Fitbit)
Eat a salad or another vegetable dish
Drink a protein shake

I’ve modified my schedule, but I stopped eating a salad each day. Therefore, I had Victoria help me with some salad recipes.

For our caesar salad, we first made our own croutons. We cut a French baguette into cubes, seasoned the cubes with italian herb seasoning, and tossed them with olive oil. The cubes were baked in the oven. Then a caesar dressing was made. Surprisingly there’s anchovies in a caesar dressing. Anchovies, mayonnaise, lemon juice, and mustard were blended. Finally, cut up pieces of romaine lettuce were tossed with the homemade croutons and caesar dressing. Shredded parmesan cheese and red onions were spread on top of the salad.

Next is the kale salad. Quinoa was cooked in a pot with water and curry seasoning, kale was chopped into pieces, and apples were cubed. After the quinoa was cooked, we mixed it with the kale, cubed apples, some red onions, and pecans. It was delicious.

Check Victoria out: https://www.eastbayhealthychef.com/

October 21, 2018

October 21, 2018October 31, 2019 ~ Campjustin ~ Leave a comment

Today I cooked with Victoria, the chef from Make-A-Wish. She brought a bunch of ingredients: chicken breast, thai basil, coconut milk, coriander, lemongrass, tofu, etc. We made Thai Basil Fried Rice and Tofu in Thai Green Curry.

For Thai Basil Fried Rice we marinate the chicken we cubed in soy sauce. Subsequently we fried the chicken in a pan. After the chicken was thoroughly cooked we added cooked brown rice. We added some sesame oil and soy sauce. Lastly, we added the Thai Basil, but only let it wilt for 30 seconds.

For the Tofu in Thai Green Curry, we made a green curry paste. For the green curry paste we added thai basil, roasted coriander, cilantro, coconut milk, shrimp paste, and lemongrass in a blender. After the paste was blended we added it to coconut milk that was being heated in a pan. After combining the coconut milk and paste together, we dropped tofu cubes into the mixture and incorporated it.

I talked to Victoria after cooking. Victoria says she loves working for herself. She wants to focus on those with physical disabilities so they can be healthier. Maybe in the future, she volunteer in a hospital and cook for them.

Check her out here: https://www.eastbayhealthychef.com/

November 2, 2018

November 2, 2018December 26, 2018 ~ Campjustin ~ Leave a comment

Today was my doctor’s appointment. Since my Mom is in Paris, I went with my dad instead. We left around 7 AM.

At the doctor’s appointment, I went in for an echo first. An echo is basically an ultrasound for your heart. Then I met with my doctor.

A funny story about my doctor: he knew me since I was a baby. When I was at Kaiser being treated for my hypereosinophilic syndrome, I was his first echo. When I was older and transferred to Stanford, I was also his patient. He said he only knew two people with hypereosinophilia, and I was both of them.

I recited my medication: 1 mg pill of Prograf 2x a day, 360 mg tablet of Cellcept 2x a day, 120 mg capsule of Cardizem 1x a day, and 100 mg of Gleevec 1x a day. If you’re a transplant recipient, you probably know all of them except for Gleevec. By my 3 months post transplant, I got off many drugs, for example Prednisone.

I lost a pound between now and 3 weeks ago. The doctor advised me to eat more protein. Since I am exercising, I’ll burn my calories and gain muscle. I’ll start drinking protein shakes again.

It is 6 months post transplant. Now I’ll only have hospital clinics, echo, and blood draws once a month. I’ll also only have to do biopsies once every 3 months.

I almost left the appointment without getting the flu shot. Since I am fresh out of transplant, I have to get my flu shot in 2 phases. During the last doctor appointment, I had my first dosage. This appointment I got my second dosage.