November 10, 2018

Today is another cooking day with Victoria. Victoria is the chef granting my Make-A-Wish (see August 9, 2018). My Make-A-Wish is to create a cookbook. Last week was actually supposed to be my last cooking session, but she decided to give me another for my birthday (see October 20, 2018) present.

We did two kinds of Alfredo today. The first type of Alfredo was a chicken fettuccine alfredo, and the second was a chicken fettuccine alfredo with mushrooms and tomatoes.

We prepared the ingredients by slicing chicken breasts into strips, thinly slicing mushrooms, dicing onions, dicing tomatoes, and mincing garlic. We sauteed diced onions in a pan with a little olive oil. When the onion was translucent, we added the chicken breast strips and minced garlic. We let the chicken sit, and after the chicken was cooked we dumped half of the mixture into another pan.

In the first pan we added garlic powder and salt, then let it simmer.

In the second pan we added the diced tomatoes and sliced mushrooms. We also added garlic powder and salt. We continuously stirred the mixture until the released mushroom juices were evaporated.

In a large pot we added 3 cups of half & half and 3 cups of chicken broth. We added fettuccine when the mixture came to a boil. We used a whole package of fettuccine (16 oz). The fettuccine absorbs the mixture, therefore it reduces; the starch released by the fettuccine thickens the mixture, making it a sauce.

play-sharp-fill

When the fettuccine was Al dente, we separated the noodle in half for each pan. The noodles were combined with the pans ingredients, and that’s it!

Today is my last cooking session with Victoria. I already chose what recipes we made to include in the cookbook. Victoria will take those recipes and write them. When Victoria is finished writing those recipes, she’ll email them to my Mom and I, and we’ll try to recreate them. Victoria and I will meet again in December to format the cookbook.

Check out Victoria: https://www.eastbayhealthychef.com/

December 20, 2018

My Mom and I met with Victoria today to talk about my cookbook.

We went to Lokanta, a restaurant in Downtown Pleasanton. Their food was good.

Victoria has to recreate the recipes and make sure they taste good. Now is Victoria’s winter break so she has time.

After she tests the recipes she’ll send them to us and we’ll recreate them too.

Then our recipes are finalized!

The process after that will be to take pictures of the food, and then a picture of me for the front cover. Maybe I can do what everyone else does: holding a plate of food and smiling into the camera.

Our goal is to publish the cookbook before February.

December 30, 2018

I presented my testimony to church today. Here it is:


Hi, my name is Justin Wang and I’m 16 years old.

Last year I was on a ride home from a doctor’s appointment with my Mom. She said “Justin, your heart is failing and you need a heart transplant.”

Let me explain: I was born normal, which is even worse. If I was born normal, then wasn’t I supposed to live a normal life?

At the age of 2, I was diagnosed with hypereosinophilic syndrome.

Hypereosinophilic syndrome is a 1 out of 50 million people blood disorder. That’s EXTREMELY rare. One divided by 50 million isn’t even a decimal! It has to be put into scientific notation!

Why would God choose me to be the one out of the 50 million people to have this extremely rare blood disorder? Why not you?

I was only 2. There was nothing I did for me to deserve this as punishment.

By age 6, I had to have heart surgery to bypass the right side of my heart. Doctors at Stanford manually rerouted my blood vessels. It was painful.

I was mad. I was very mad. Why would God do this to me?

Last year, my grandma prayed for me. She asked God “Please let Justin have a heart by his 16th birthday.”

When I first applied for the transplant list, I was denied. The second time I was accepted. However, I was the lowest priority on the list. The doctors told me that I was there “for a taste” because there was no way I’d get a heart. The last time a person as low priority as me got a heart transplant was 4 years ago.

2 weeks later I got the call. There was a heart waiting for me.

That was a miracle.

I had so much joy. I thought, “There’s no way this is happening.” But it was real.

Remember when my grandma prayed for me? For me to have a heart before I turned 16?

Just like what David said in Psalm 34:4, “I sought the Lord, and he answered me, and delivered me from all my fears.”

After surgery, I was in horrendous pain. The worst pain imaginable.

That’s when I asked back to the question, why me? Why do I have to experience this pain? Why not you? Instead of anyone of you, why was it me?

The hospital has a chapel, and I often invite the pastor from that chapel to pray for me. Prayers gave me comfort through that pain that I would be healed.

After my heart transplant, I couldn’t go back to my house. I had to stay at a nearby housing facility, which is the Ronald McDonald House, for 3 months.

My TCCBC (Tri City Chinese Baptist Church) church family visited me at that nearby housing facility. I am so thankful for their caring, support, and prayers, because I needed it.

I met so many people at that housing facility that had chronic illnesses or diseases, and most of them believed in God.

That’s because God gives them hope, and hope gets them through hard times.

In Psalm 46:1-3, the bible says “God is our refuge and strength, an ever-present help in trouble. Therefore we will not fear, though the earth give way and the mountains fall into the heart of the sea, though its waters roar and foam and the mountains quake with their surging.”

We may never know why we go through our hardships, but we can find comfort knowing God is watching over us. Without God, I wouldn’t have had a heart.

Right now I’m doing great. It’s been 6 months since my heart transplant, and I couldn’t be better. Everyday I swim, which I couldn’t before. Make-A-Wish is also sponsoring me to make a cookbook. I’m going to publish it, and it’ll help other kids with heart defects.

What is my future? My future will be amazing. I’m going to go to University, have a great partner, and be participating in triathlons. All because of God, this is possible.


Everyone loved my testimony! The people at church applauded me. Everyone in my Sunday school also loved my testimony. They said it was inspirational.

January 15, 2019

Beth from Make-A-Wish called me today.

She announced to me that the cookbook is almost done, and that it’ll be published in April.

She told me that my video made her cry. To quote from Beth: “You hear it from the wish kids all the time, but seeing and reading about it gets to you.” She also said that this blog made her feel famous. 😂

Beth published my video onto the Make-A-Wish website. Or was it the Make-A-Wish Facebook Page? Whatever. It was Make-A-Wish something.

Beth asked me what my plans were with the cookbook. Do we host a cooking show at the Ronald McDonald House and pass out the cookbook to everyone there? Do we sell the cookbooks online and donate the proceeds to charity?

I said hosting a cooking show sounds pretty cool.

Beth asked me about how we’re going to do the cooking show. Who cooks? I’m going to talk, but am I going to talk and cook simultaneously?

I said that My Mom and Beth could cook, and I could talk while they’re cooking.

Beth also asked me what other organizations I wanted to partner with. I told her Donate Life. If you read my How To Be An Organ Donor Page, you’ll see that I reference Donate Life as where to register as an organ donor.

Donate Life is the biggest organ donation network in America. Well, next to UNOS (United Network for Organ Sharing).

Beth told me that was a LITTLE too big. But, I mean, Make-A-Wish is pretty big too, right?

I told her partnering with The Pink Dot Club would also be pretty cool. The Pink Dot Club is affiliated with Donate Life.

Beth told me that she would contact the Ronald McDonald House, and I could work on contacting Donate Life.

A last thing: Beth organized a cooking show for us at the Macy’s on Union Square San Francisco in April of the day of national wish day. Sounds cool!

April 30, 2019 – Cookbook Release

I released my cookbook today (and it was AMAZING).

Yesterday I was so excited that I stayed up late jamming to Hannah Montana.

Today at 2 PM I  left school and met Sammie, Kina, and Ray at the quad. Sammie drove us to my house, and at 2:30 there was a limo in front of my house.

I mean, a LIMO!

The driver drove us to the Ronald McDonald House at Palo Alto. My mom and grandma already left before us, so they were already there.

When we arrived we were greated by a photographer sent by Stanford. He took pictures of us, and my mom came outside.

Oh, and Kayano came! In case you don’t know, Kayano was my neighbor at the Ronald McDonald House. We spent the summer of 2018 together.

Kayano got his kidney transplant! It occurred on April 6, 2019. If you remember the joy of January 3, 2019 and the disappointment of January 4, 2019, Kayano’s kidney was long  overdue.

I’m so glad that I saw Kayano. It was nice touching up with old friends, especially seeing how well he was doing.

Another person that came was Jacob. I met Jacob at Camp Taylor, a camp just for patients with heart defects.

We grew up together, and he visited me at the hospital.

The inside of the Ronald McDonald House was incredible. Beth really outdid herself.

There was a table with a Make-A-Wish table cloth covering the surface, a custom poster with ‘Justin’s Just Recipes’ and my pictures on there, and the kitchen was fully ready for the presentation.

The cookbooks were beautiful. I know I saw them before on Shutterfly, but they looked better in person.

Are you ready for the most exciting part?

THE WATER BOTTLES HAD MY PICTURE ON IT!

I mean, you know you made it when the water bottles have your picture on it!

Along with that, the napkins had my name on it, and there were even bookmarks with my name on it!

WHAT?!?!

As we approached five, it became more and more hectic. Reporters and people showed up.  

It was AMAZING.

I met the CEO of Make-A-Wish, the CEO of the Ronald McDonald Houses, the board of directors of Make-A-Wish, the director of nutritional sciences at Lucile Packard, the director of marketing at Lucile Packard, and the East Bay representative of Donate Life.

I also met reporters from KTVU Fox 2 News, NBC Bay Area, KTSF Channel 26, Lucile Packard, The Palo Alto Weekly, and Make-A-Wish.

Get them contacts! Make those connections!

When it became five, I made my speech while mom and Victoria cooked the Pancit.

Click Here for my speech.

Afterwards, I signed a couple cookbooks and got interviewed by all the news stations.

It was special. Today was special.

A Lucile Packard representative asked if I was tired, but I told her no. Are you kidding?

I’ve never been the one who’s been noticed, or the person people would swoon over.

It was nice winning.

Bring on the reporters!

The driver drove Sammie, Alexa, Ray, and me back to my house in a black SUV (still pretty cool).

At home, Sammie sent Ray and Alexa back to their houses.

Reflecting back, I think today is more important than just a cookbook release. It’s a symbol of my heart transplant coming to an end.

I know that April 27, 2019 was technically the one year mark, but today feels more like the end of an era. I think today’s special event is really a sign to “move on”.  

Today was special. I’m so happy. Wow.

October 16, 2019 – Hanging out with Beth from Make-A-Wish

Guys, can I tell you how awesome Beth is? We met Beth on August 9, 2018. She’s the director of Make-A-Wish Greater Bay Area. In fact, she’s the one that introduced my cookbook.

Today my mom and I decided to meet with Beth. Since today’s PSAT schedule, I have the entire morning open to myself. 

Beth is retiring. Woohoo! I am so excited for her next step. I understand she’s a little uneasy, but I believe in her. She pondered over it and made her final decision, and I support her. 

We met at Oakland. More specifically, at a coffeehouse called Modern Coffee. There are apparently 3 Modern Coffees in Oakland. My mom dropped me off at the wrong Modern Coffee (which I gave her directions her to), and I had to walk 15 minutes to get to the other Modern Coffee. My mom already met Beth by the time I arrived.

We talked a lot about my future. About my college, I’d want someplace in a city. Not in California. Beth told me education is extremely important. I have to get a college degree. About my job, you’d think I’d know what job I could do. But advocacy doesn’t pay the bills. Beth said I could always work at Make-A-Wish. In fact one of her coworkers was a wish child. 

I said I would be going to the conference in Phoenix. The national Make-A-Wish conference is  held in Phoenix, Arizona (where their national headquarters are), and this year yours truly was invited to speak. Beth said to have fun, and I for sure will!

We talked about Beth. Of course I can’t write it down and share it with you (it’s her personal stuff), but she did recommend to my mom for her to shelter foster children.  I mean since I’m going to go to college, my mom might have some time. She can fill that empty hole with foster children.

¯\_(ツ)_/¯

I had to get back. Thankfully there was that PSAT schedule, and there was *shrug* no use in taking it. I had to go back to math class. My classmate saw I posted a picture of Beth and I on social media and asked me how was it. I said “good.”