January 3, 2019

Kayano’s kidney came today!

If you remember, Kayano was my next door neighbor at the Ronald McDonald House (see July 3, 2018 for his birthday).

This is amazing. Kayano has been at the Ronald McDonald House since May, and he really deserves his kidney.

After his transplant Kayano can finally go home and go back to a normal life. That’s awesome.

Kayano’s life today will change forever. After his kidney transplant, he’ll experience sensations he has have never experienced before, and be able to do actions he’s never done before.

Waiting is the hardest part, but they got through it.

They got through it! Woohoo!

Kayano has a great life ahead of him. I can’t wait to see what’s in store for him.

February 28, 2019

I haven’t posted much lately for the entire month of February, and I’m sorry about that.

I’m going to be real honest here, I kinda forgot about this blog. I know that sounds bad, but if you think about it, it’s actually good.

It means that I don’t think of my heart transplant much anymore.

And that’s great!

At the beginning of the school year, I remember thinking about my heart all day at school. Walking through the hallways, taking notes, and eating lunch, all I thought was, “Heart transplant, heart transplant, heart transplant.”

Heart transplant used to be my life, but now it’s not.

Now that I have a life, everything’s back to “normal”. I know I can’t be completely “normal” again, but maybe I can be semi-”normal”.

March 27, 2019

I call today a success!

Remember December 12, 2018, when the G-tube doctor told me I needed to gain ten pounds in three months?

I have gained ten pounds!

I told the doctor that I don’t think the medication need me feel more of an appetite, so I’m going to stop taking the Periactin (Cyproheptadine).

My mom is still a little nervous (and I am too! March 26, 2019) about pulling it out so we’ll wait until June. During June we’ll pull out the G-tube for good!

Since I have had the G-tube for almost my entire life, it’s most likely the hole won’t close up on its own. We might need stitches to close up the hole for good.

Also, when we pull the G-tube out, the hole will be leaking for a few days. I will be dripping everywhere, so I predict a big problem.

Oh well, we’ll cross that bridge when we get there.

The Promise Land -April 27, 2019

Hello, world! Today is exactly one year since my heart transplant.

I cannot emphasize how important today is. The one year mark is my promise land: filled with happiness, liberty, and freedom.

I want to recap with what I was doing on April 27, 2018.

During Spring Break I was at Stanford for another procedure. My mom and I were looking at online schools for my sophomore year at High School.

Since I thought 2018 was my last year at a physical High School, I decided to have some fun. That weekend I was going to attend a club convention at San Francisco.

April 27, 2018, was a Friday and I was planning to leave on Saturday. Before I went to sleep, I packed for a night at a hotel.

At 3 am my dad woke me up. He told me there was a heart waiting for me.

When I was in the hospital, it hurt so much. I cannot stress how much pain I endured.

Holding onto hope was hard. Not only was I fighting physical battles, but I was also fighting mental battles.

I looked at the one year mark as my promise land. I said to myself, “One year from now everything and everything will change.”

Let’s be real, I didn’t have anything in the present, so I looked into the future.

I didn’t expect the pain to get to where I am right now, but I got here.

Not only did I survive, but I thrived. As Mr. Lewin told me, “You not only persevere through hardship, but you exceeded beyond all expectations. You knock on the door before blowing it up.”

That’s not what he precisely said, but it’s close.

There is hope in the world. I didn’t believe it in the hospital, but I sure do now.

I know that in the future I will face tremendous challenges I can’t even fathom right now, but with love, hope, and perseverance I can persist through anything.

Yes, I can persist through anything.

Hope is mankind’s greatest weakness and greatest strength.


☝️ fun I had with friends to celebrate

May 11, 2019

Today I had a full night of sleep, which is awesome. When I woke up, my undershirt was pulled above my chest, and my hand was on my chest.

My scar is still sore, but not as sore as it used to be last year.

Reflecting back, exactly one year ago from today, I experienced intense pain. I doubted my heart transplant so many times, because how could life-saving treatment be so painful?

I was wrong because everything is so beautiful right now.

I am so grateful for everything right now. For sleep, food, health, and comfort.

Count your rainbows, not your thunderstorms.

Alyssa Knight

Last Day of School – May 31, 2019

Today was the last day of school, and it couldn’t have gone better. I officially survived my sophomore year (10th grade) of High School!

I did fine academically this year, which is unexpected. Another thing surprising is how well I adjusted back into life.

This school year was different from all the other school years because of my heart transplant. A year ago, I was picking brochures for my online High School. I was preparing to start my sophomore year online.

I think my most significant accomplishment of this year was my success. I not only survived, but I also thrived.

In a year, I started a blog, released a cookbook, and developed healthy habits that’ll guide me for the rest of my life.

If I can do all of that within a year, who knows what will occur during the next year?

I have dreams, but for the first time, my dreams seem attainable. I’m so close to my goals that I can feel my fingertips barely grazing them.

As my English teacher said, “I’m expecting great things from you.”

This is only the beginning. The beginning of what? I don’t know. Whatever IT is, it’s going to be great.

Look out world, Justin Wang is coming!