November 15, 2018

My Mom decided to pull me out of school after study hall. The air pollution is so bad from the fire nearby. I signed out by the health office, and I met the school nurse. I told her I had a heart transplant, and she instantly knew that I was Justin.

She recommended me to not come to school tomorrow. She’s not the only one; all of my classmates also told me to stay home.

I’m considering it. I miss school constantly for doctor appointments, and I know when you miss one day of school, you do twice the work of that day. That’s why I’m hesitant to skip school.

It was nice meeting the school nurse.

November 15, 2018

I also interviewed Mr. Lewin. Mr. Lewin is my math teacher. He’s the one that told me to write my story (see October 5, 2018).

He’s so nice to me. He told me that it was amazing that I was doing so well socially, academically, and physically. As a teacher, he’s seen other students struggle, but not with anything as life threatening as me. As a teacher, he’s also seen other students with great families, communities, education, and finances, yet they make bad decisions and end up falling to the bottom.

If you’re in the hospital, just know that you need to have hope. Hope is the one thing that’s guaranteed by yourself. When you survive your ordeal, you’ll become stronger as a person. That’s something to hope for.

A student spilled water onto his floor multiple times. The floor is carpet, so mold can grow on it. Mr. Lewin chastised that student, because if I get an infection from the mold, then that’s… bad.

December 6, 2018

I’ve been sneezing and blowing my nose all day.

I’m scared that I’m sick. I don’t want to be sick.

I don’t want my heart to be rejected by my body. Or my heart to have an infection.

Okay, so if I’m sick, is it really that bad? There’s a very little chance of that happening.

There’s still a chance though.

Idk maybe I’m just too worried.

I do everything to protect myself from being sick. In school when someone even coughs I instantly switch seats to the back of the classroom. I never participate in activities outside because I don’t want to get cold or muddy.

Oh wait… yes I do! Yes I do!

Everyday I swim at night.

Everyday I swim at night!

The one thing that’s supposed to be shielding my heart from infections, is giving my heart infections?

It’s also December. Ever since late November it’s been more and more cold.

Well, I have a doctors appointment tomorrow at Stanford.

Should I tell them about this? Is it even important?

They have dying children to take care of. Should I tell them I think I might be sick?

January 26, 2019

So today was my first lesson with a personal trainer. If you’re thinking: wait, don’t you already do swimming? Yes, I do. I also want to do training, and you can read about that in my January 15, 2019 journal entry.

First he took my body composition. I stepped on some balancing board and it took my body composition.

Then he talked about what my goals were. I have three goals:

  • Weight gain
  • More muscle
  • Better strength

He said more muscle was such a boy thing to do. Lol, it is.

I told him my restricted areas were my legs and chest. The legs because of my leg pains and chest because of my scar.

He said we would definitely avoid my chest, but told me we should still exercise my legs. I was unsure, but he said the legs are unavoidable.

We didn’t really do anything today.  He introduced me to the TRX machine and modified treadmill. It was pretty easy.

The schedule is to meet every two weeks on Saturday. He’s busy every other Saturday, so it gives me time to rest.

So far, so good.

March 13, 2019

Daylight savings returned on Sunday, and the clock is turned an hour forward. The sun shines brighter when I walk to school, and that means I should start reapplying sunscreen onto my face.

After a heart transplant, you’re at a higher risk for skin cancer with exposure to the sun, and that means… cancer. I’ve had enough of hospital stuff, and I think it’d be pretty dumb going back to the hospital infected with a preventable disease.

In the fall I got away with hiding the sun from my face with a hoodie, but now that won’t cut it. I got lazy with applying sunscreen because it also hurts. I try really hard to keep the sunscreen out of my eyes, but it always seems to get inside there, and my eyes will hurt for the rest of the day.

However, skin cancer is no light deal, so I just gotta suck it and deal with it. It’s okay, skin cancer would be really bad, so I don’t want that. Also, I’ve added a sunscreen stick in my backpack for when the 80 minutes run out.

March 14, 2019

Today I felt sick in Chemistry so I left school early. Before I left, I had to check in with the school nurse.

I was in between going home or staying at school, so I asked the nurse for her opinion.

I couldn’t believe how ignorant the nurse was. She told me, “It’s not a matter of whether or not you should stay at school, it’s a matter of whether or not you can make it through the school day.”

No, it’s a matter of whether I should stay at school, or not.

She knows about my heart transplant: I saw her pull my health record up on the school website. She should know that I’m more prone to infections, and that I need to be cautious while sick.

March 26, 2019

I’m sick.  

The thing is, I’m not really worried about it that much. I’ve been sick before (June 3, 2019), and nothing really happened. Also, I’m approaching the one year mark anyways, so I’m not extremely vulnerable to infections.

I might seem very chillax compared to my other journal entries (December 6, 2018), but that’s just the way it is boo. I’m an unpredictable person, hahaha.

I decided to not go to school today, but only because today is a useless day anyways. Today at school is a block schedule, which means a full day of nothing in each class.

I also swam today, but only for twenty minutes. I was kind of debating about it, since it is an outdoor pool and I swim at nine in the evening, but whatever. Exercise number one.

Tomorrow I might go to school, but my mom doesn’t want me to risk it. I might get even more contaminated, but I have two tests.