July 17, 2018

Ramen Nagi, a restaurant chain in Japan, just opened their first U.S. location in downtown Palo Alto. Since downtown Palo Alto is walking distance from the Ronald McDonald House, we decided to go.

Ramen Nagi has a very long line, so if you decide to go but can’t stand up for a long duration of time make sure you can sit on something. Bring a chair if you have to.

I got the squid ink ramen and my mom got the Tonkotsu ramen. The Tonkotsu ramen was good, and so was the Tonkotsu ramen, but they weren’t excellent. I think the restaurant is over hyped, and it’s not worth waiting for.

July 18, 2018

Every Wednesday at the Ronald McDonald house there’s a movie night. Usually no one goes (I don’t know why?), but I invited my neighbor, Kayano, and his family to come. I also invited Johanna (pseudonym) and her mother Tanjila (pseudonym) to watch the movie with us.

Tanjila is a really sweet person. She was nervous about bringing Johanna to Stanford, since they live far away. She said I made them less nervous, which I felt great about. Johanna needs a lung transplant, but she’ll need to be on an oxygen machine in the meantime.

We watched Trolls. Trolls is a movie about trolls. It’s so bad it’s hilarious. I loved laughing at the awkward moments.

If you’re at the Ronald McDonald house or the hospital, you’re most likely in pain. I suggest finding something to occupy your time to distract from the pain.

At the Ronald McDonald House there’s tons of activities for you to enjoy, such as bingo night, arts & crafts, or movie night. My personal favorite is sitting at the kitchen and reading a book. People are more open to talk to you if you make yourself seem available. The Stanford Mall is across the street, and Downtown Palo Alto and Safeway are walking distance away. Safeway has a food bar, and Downtown Menlo Park is not far from Safeway. If you can make it to Downtown Palo Alto or Downtown Menlo Park, you can hop on a CalTrain and travel to neighboring cities.

At the hospital, check out the Family Resource Center. I rented so many movies at the Family Resource Center that I finished the Captain America, Mission Impossible, Lord of the Rings, and Avengers series. The hospital also has a great garden to explore, and each unit has a balcony so you can have fresh air. I remember my room had so much stenk that outside smelled like heaven. Stanford has playrooms for you to enjoy. The playrooms include games, and there are other people at the playrooms you can play with.

July 20, 2018

Today my Mom and I walked to the Stanford Theater. The Stanford Theater is only 1 mile away from the Ronald McDonald house, so it’s very convenient if you’re able to walk. The Stanford Theater is an old school theater that shows movies made during the Golden Age of Hollywood, such as Casablanca or Gone with the Wind. Some of the movies are black and white, so it’s a cool vintage experience.

We watched Roman Holiday, and a part of Queen Christina. Roman Holiday is a movie that launched Audrey Hepburn into the public eye. Audrey Hepburn plays the princess of Rome who runs away with a random guy to have fun. Queen Christina is about the well educated Queen of Scotland that decided she didn’t want to marry.

If you’re at the Ronald McDonald House, or waiting to go to the Ronald McDonald House, you have tons of things to do at downtown. Being in the hospital sucks, but if you can travel to Downtown Palo Alto, there’s so much you can do. There’s restaurants, music, and the Stanford Theater.

After we watched the movie we went to a nearby bakery, Paris Baguette, to get some pastries. I don’t eat sweets, so I got the savory baked goods.

July 21, 2018

Every Saturday my Dad visits me at the Ronald McDonald House. This Saturday we decided to drive along the mountain.

We drove away from Palo Alto to the Windy Hill Open Space Preserve. We saw a great retirement center which I think would be perfect for my Mom. The mountain was nice, but no wifi, so that sucks.

My Mom and I also decided to walk to downtown for dinner tonight. The Ronald McDonald House is about one mile away from Downtown Palo Alto, so it’s bearable. I try to walk at least 10,000 steps (tracked by my Fitbit) everyday for my physical therapy.

We ate at Wahlburgers. Wahlburgers is a restaurant chain owned by Paul Wahlberg and partnered with his two brothers, one of which is the famous actor Mark Wahlberg. Wahlburgers even had a TV show made out of it.

We decided to walk back to the Ronald McDonald house by cutting through the Stanford Mall. If you’re at the Stanford Mall at night, it’s beautiful. The lights are still on and the music still plays, but no one’s there so you can enjoy the moment.

July 22, 2018

My mom’s friend visited me at the Ronald McDonald house today. She’s a principal at a preschool. We walked across the street to a cafe at the Stanford mall. I got to eat my salad filling my daily requirement.

Here’s my daily checklist:

  • Exercise at least 10 minutes walking on the treadmill
  • Ride at least 1 hour on the gym bike
  • Walk 10,000 steps (tracked by my Fitbit)
  • Eat a salad or another vegetable dish
  • Drink a protein shake

Today is my grandma’s birthday. I’m also leaving the Ronald McDonald house in a couple of days so we’re celebrating today as a going away/birthday party.

Kayano, Koda, his mom, and his grandma came to celebrate. Kayano is my next door neighbor being treated on dialysis, eventually leading up to his kidney transplant. Emma’s (pseudonym) family also came. Emma is my 16 year old friend at the Ronald McDonald House. We brought out a cake and served it to everyone except Kayano, who doesn’t eat.

July 24, 2018

Today is my doctor’s appointment, and tomorrow I’ll leave the Ronald McDonald house. July 27 is 3 months post transplant, but since I’ve been very healthy I get to leave early. I don’t know whether I’m happy or sad, but I know once I leave I’m officially “healthy”.

July 25, 2018

Today I left Ronald McDonald house. It couldn’t be more bittersweet.

For one, the Ronald McDonald house was probably the happiest time of my life. I met a lot of people that I became friends with. They provided a network of support which is hard to leave. Everyday was also an adventure. I could walk across to the mall, get food from the common area, talk to people in the kitchen, or explore downtown Palo Alto.

On the other side, I’m glad to leave. I hate being in the hospital. Leaving means I’m healthy, and I want to be normal again. Even though I’ll have a hard time being “normal” again once school starts, I will be.

I’ll always remember my time at the Ronald McDonald house. I’ve met so many people that had amazing stories. I’ll always keep them in my mind.

July 26, 2018

It’s weird being back at home. Being at the hospital sucked, but somehow I have nostalgia about it.

For one, I have my own room. I’m glad to have my own place to sleep and scroll through my room. Secondly, there’s no people around. At the Ronald McDonald House there were always people around in the kitchen or TV room. Thirdly, I have nothing to do. Unlike the Ronald McDonald House, Pleasanton’s downtown or mall isn’t walking distance away. Instead I just play games on my phone or watch The Office.

August 7, 2018

Noah’s family from the Ronald McDonald House mailed a package that arrived at my house today. Noah is an 8 year old boy that just started 4th grade. He’s smart for his age; he skipped 3rd grade. He was brought to Stanford for an experimental drug to treat his stomach cancer. After being on the treatment, his tumor was reduced by over a half in a month. “It was a miracle drug,” his parents said.

Inside the package was an Arizona T-shirt (they live in Arizona) and a Fire 7. His parents know I like reading, so they thought the Fire 7 could be used to save some trees. It was really thoughtful of them! Today, I wore their Arizona T-Shirt when going back to school shopping.