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September 28, 2018

Today was my doctor appointment. At 7 AM I woke up and got into the car. I slept on the whole ride to Stanford, except waking up to take my medicine. I remembered to grab the cards we made at the Pink Dot Club meeting (see September 18, 2018). After putting on my mask, we … Continue reading September 28, 2018 Read More

September 27, 2018

Today was my appointment with the endocrinologist. I started seeing my endocrinologist when I was really young, after my first heart surgery at Stanford. Because of my heart failure, I didn’t have enough growth hormones in me. On the growth curve, I wasn’t catching up to my peers. Before transplant, 6x a week I would … Continue reading September 27, 2018 Read More

September 26, 2018

Amy (see August 24, 2018) was my substitute teacher for English today. When I walked into my classroom, I was really shocked to see her sitting at the teacher’s desk. I waved to her and she responded with a smile and a wave. Later in the class we talked about transitions back into life. I … Continue reading September 26, 2018 Read More

September 22, 2018

Victoria came, and we made spaghetti squash with brussel sprouts and Singaporean noodles today. In case you don’t know, Victoria is a chef that’s granting wish. Together, we’re going to create a cookbook. I told Victoria about Nicole, and Victoria said people like Nicole, people with medical disabilities, is why she’s doing this. Victoria said … Continue reading September 22, 2018 Read More

September 21, 2018

I had a swim lesson today. My coach knows about my heart transplant, my scar, and the fact that I’m immune compromised. She tells me if I need a break, then I should tell her. It’s amazing that I’m swimming so long. Before transplant, I did swim but only 10 laps. What happened each lap … Continue reading September 21, 2018 Read More

September 20, 2018

Nicole died today. Nicole is a 10 year old girl battling heart failure and she’s been in the hospital since May. She was born with a non functioning right artery. As a result, she needed to replace her artery with a mechanical one. As she grows up, her heart grows too and she needs her … Continue reading September 20, 2018 Read More

September 18, 2018

Today was a Pink Dot Club meeting. Pink Dot Club is a club on my school that raises awareness for transplant. I met them at the transplant reunion party (see August 11, 2018). We wrote cards to patients in the hospital. I made cards specifically to Nicole, the 10 year old girl in the hospital … Continue reading September 18, 2018 Read More

September 11, 2018

Today is my doctors appointment. In the waiting area we saw someone from the Ronald McDonald House. She’s a toddler that had her heart transplant shortly after me. We met her at the Hospital Prom. She’s doing really well. After my appointment, we saw Nicole (see September 20, 2018). Nicole is a 10 year old … Continue reading September 11, 2018 Read More

September 8, 2018

Another cooking day with Victoria! Victoria is the chef that’s granting my wish from Make-A-Wish. Today we made green onion pancake, steamed broccoli, and a pasta salad. The green onion pancake is a recipe my grandma knows. Since we didn’t use any yeast, the green onion pancake wasn’t easy to make. We made a dough … Continue reading September 8, 2018 Read More

May 3, 2018

Yesterday I didn’t poop. They even had some guy massage my butt. Today they placed me on diuretics. I pooped. My Dad also visited me today, so my Mom went home. We walked around the ICU. For physical therapy I’m supposed to walk a loop around the ICU 3 times a day. My heart pounding … Continue reading May 3, 2018 Read More

September 6, 2018

Noah came to Stanford this weekend. Noah is a 10 year old boy I met at the Ronald McDonald house that was receiving an experimental drug for his stomach cancer. Nolan and I send each other gifts (see August 7, 2018). After school, my mom and I drove from Pleasanton to Stanford. We met Noah … Continue reading September 6, 2018 Read More

September 4, 2018

Today was the Pink Dot Club’s first meeting. The classroom was packed; there were probably about 40-50 people there. Maddy, the club president, introduced the club’s motto: to raise awareness for organ transplant. We also did a Kahoot, which is a trivia game, about transplant. I got 15th place (oops). Read More